Interpretation of "Average Patient Survival Rate Change, Center-Reported
(CR) vs CR + Social Security Death Master File". The following examples refer to
the kidney table.
The columns in this table refer to the completeness of follow-up provided by
the transplant centers. This reports the percentage of days that are targeted
for inclusion during the follow-up period relative to the number of days that
were actually reported with follow-up forms submitted by the center. See the Center-Specific
Reports Analytic Conventions for further information.
A facility with 80% follow-up might follow 80% of its patients for the entire
time, or might follow all of its patients for 80% of the target time. In either
case there is a period of time equal to 20% of the target window of follow-up
time during which an event (death) might happen but would not be reported by the
center. This table uses the SSDMF to ascertain the probability that this "missed
time" has similar probabilities of containing deaths, compared to the "covered
time".
The first two rows show that most kidney programs have at least 90% complete
follow-up.
The first set of survival statistics is not weighted by facility size. That
is, in these averages, a facility performing 4 transplants is treated the same
as one with 150 transplants. Separately for each completion percentage (column),
most groups of facilities show no difference in survival when the extra
ascertainment of the SSDMF is used. The "center change" row refers to the
average of the changes at all the centers, and is not the difference in the two
averages. The second set of survival statistics shows these same averages,
giving more weight to the larger volume transplant centers.
The largest differences are seen in facilities with the lowest percentage of
follow-up completed. For these facilities, overall survival is higher when the
extra ascertainment is used. This is possible because though the SSDMF adds
information about deaths, it also adds years of follow-up to the survival model
for patients who were otherwise excluded because they were not reported on by
the center. A summary of the deaths and years of follow-up added by use of the
SSDMF is shown in the last two sections of the table. For example, in the kidney
tables, the SSDMF adds about 0.7 deaths (unweighted for facility size) per
facility, and at the same time adds about 10.5 years of follow-up, resulting in
an overall survival rate that is very similar to that based only on
center-reported information.
For full details on the calculation of center-specific survival, see the Center-Specific
Reports Analytic Conventions.