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Table 9.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1998 to 2007

Liver Waiting List

Primary Diagnosis (Collected for listings after 1994) Year
1998 1999 2000 2001 2002 2003 2004 2005 2006 2007
Total Patients 17,379 20,568 22,959 25,214 25,914 25,623 26,297 26,580 26,720 26,558
Deaths 1,567 2,018 2,017 2,319 2,157 2,096 2,161 2,141 1,974 1,816
Rate 160.0 166.2 142.6 143.1 131.4 129.3 131.2 130.0 121.0 112.9
Non-Cholestatic Cirrhosis Patients 10,881 13,019 14,670 16,188 16,430 16,154 16,788 17,196 17,363 17,428
Deaths 988 1,306 1,354 1,547 1,353 1,327 1,417 1,438 1,284 1,210
Rate 158.0 166.0 145.9 146.1 125.8 123.9 129.2 129.2 115.2 108.7
Cholestatic Liver Disease/Cirrhosis Patients 1,909 2,164 2,320 2,439 2,522 2,467 2,445 2,410 2,403 2,326
Deaths 131 177 164 180 165 140 146 132 132 122
Rate 108.1 126.7 106.0 104.7 95.3 81.4 85.8 80.0 80.5 79.3
Acute Hepatic Necrosis Patients 1,058 1,263 1,408 1,491 1,541 1,454 1,455 1,403 1,307 1,254
Deaths 146 170 143 156 178 148 149 129 131 103
Rate 324.1 283.1 201.2 185.3 216.5 186.4 192.6 178.2 190.4 159.6
Biliary Atresia Patients 480 523 546 601 623 599 597 593 557 557
Deaths 22 22 23 33 23 16 11 18 21 14
Rate 87.7 76.9 72.3 87.2 60.5 40.9 28.8 49.2 61.5 43.5
Metabolic Diseases Patients 413 438 467 504 495 480 476 506 506 461
Deaths 36 33 34 28 40 38 44 36 38 29
Rate 165.9 138.2 125.6 91.3 132.9 143.3 165.6 127.9 145.7 115.8
Malignant Neoplasms Patients 220 300 335 415 502 501 608 694 800 916
Deaths 20 27 26 43 45 32 29 28 28 33
Rate 180.0 177.6 140.5 180.6 196.6 151.9 129.8 119.9 114.2 108.8
Other Patients 1,835 2,265 2,613 2,976 3,201 3,399 3,400 3,257 3,304 3,165
Deaths 155 216 231 281 300 335 318 304 291 259
Rate 158.5 172.3 156.1 160.5 163.5 185.5 170.5 168.4 167.0 154.5
Not Collected Patients 51 48 48 45 46 40 39 38 34 34
Deaths 3 3 4 4 1 1 1 1 - 1
Rate 63.5 67.6 91.8 94.4 24.8 25.5 26.6 27.9 - 29.9
Unknown Patients 532 548 552 555 554 529 489 483 446 417
Deaths 66 64 38 47 52 59 46 55 49 45
Rate 239.2 209.2 120.8 138.2 166.4 213.0 176.4 224.8 221.7 248.3


Source: OPTN/SRTR Data as of May 1, 2008.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.



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