Table 13.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1997 to 2006

Heart-Lung Waiting List

Primary Diagnosis (Collected for listings after 1994) Year
1997 1998 1999 2000 2001 2002 2003 2004 2005 2006
Total Patients 371 355 348 329 300 292 262 262 225 209
Deaths 63 43 55 46 42 42 20 29 28 20
Rate 284.2 187.3 241.5 222.6 202.1 207.6 107.6 160.5 178.6 142.7
Congenital Disease Patients 139 124 119 97 73 67 53 41 17 12
Deaths 24 8 15 13 8 8 4 8 3 -
Rate 302.9 90.1 175.8 191.7 133.3 163.1 104.3 298.8 255.3 -
Primary Pulmonary Hypertension Patients 67 58 51 54 59 55 46 37 21 16
Deaths 12 13 9 9 13 9 5 3 - -
Rate 324.2 396.6 311.9 321.1 386.2 278.1 175.4 120.8 - -
Cystic Fibrosis Patients 12 10 7 4 3 4 4 4 4 3
Deaths 4 3 3 1 - 2 - 1 - -
Rate 874.9 576.8 * * * * * * * *
Emphysema/COPD Patients 12 12 7 9 7 4 3 3 1 -
Deaths 3 2 1 3 1 1 1 1 - -
Rate 338.9 295.4 * * * * * * * -
Retransplant/Graft Failure Patients 17 19 16 9 5 4 3 3 1 1
Deaths 1 2 3 1 1 1 - 1 - 1
Rate 94.8 178.8 370.8 * * * * * * *
Other Patients 36 30 28 38 40 34 37 38 32 29
Deaths 11 5 4 6 8 6 4 5 5 5
Rate 638.6 288.0 209.4 294.3 344.3 297.2 199.6 235.6 278.2 344.1
Not Collected Patients 5 5 5 5 5 5 5 5 5 4
Deaths - - - - - - - - 1 -
Rate * * * * * * * * * *
Unknown Patients 83 97 115 113 108 119 111 131 144 144
Deaths 8 10 20 13 11 15 6 10 19 14
Rate 135.0 159.8 270.9 171.1 144.4 171.9 67.7 102.3 183.0 143.8


Source: OPTN/SRTR Data as of May 1, 2007.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.