Table 12.3

Reported Deaths and Annual Death Rates Per 1,000 Patient-Years at Risk, 1997 to 2006

Lung Waiting List

Primary Diagnosis (Collected for listings after 1994) Year
1997 1998 1999 2000 2001 2002 2003 2004 2005 2006
Total Patients 4,018 4,528 4,869 5,143 5,375 5,401 5,552 5,653 5,275 4,814
Deaths 437 519 599 519 532 529 489 511 397 284
Rate 184.5 185.2 190.4 152.6 149.1 144.9 131.4 134.5 114.9 97.1
Emphysema/COPD Patients 1,165 1,390 1,537 1,627 1,659 1,611 1,653 1,618 1,471 1,350
Deaths 87 101 112 121 104 98 98 100 71 54
Rate 123.3 117.2 113.3 113.6 96.8 92.4 92.2 92.9 75.1 66.0
Cystic Fibrosis Patients 652 725 770 799 801 789 780 806 738 692
Deaths 85 102 119 105 99 87 79 81 69 34
Rate 227.1 224.0 239.1 201.8 182.6 161.1 148.1 150.9 140.4 79.3
Idiopathic Pulmonary Fibrosis Patients 473 590 655 733 835 924 1,020 1,066 996 949
Deaths 83 108 121 109 129 155 140 153 100 83
Rate 343.0 347.0 324.7 256.1 268.6 289.3 230.1 240.7 180.8 186.7
Alpha-1-Antitrypsin Deficiency Patients 265 276 276 282 302 294 285 271 250 214
Deaths 14 11 19 8 9 13 10 11 11 9
Rate 87.3 59.4 98.7 40.5 43.0 62.5 49.5 54.8 59.5 56.9
Primary Pulmonary Hypertension Patients 397 439 481 505 552 523 535 530 501 430
Deaths 46 53 68 48 68 42 49 34 26 25
Rate 169.4 172.7 197.3 121.8 161.8 100.2 116.9 78.0 63.7 71.4
Retransplant/Graft Failure Patients 225 223 239 247 236 230 222 218 186 142
Deaths 21 20 30 29 25 31 21 31 26 16
Rate 158.8 148.2 210.3 178.9 165.4 215.6 153.4 258.2 276.1 246.4
Congenital Disease Patients 135 132 130 130 111 101 100 88 81 76
Deaths 17 19 16 11 10 10 9 5 3 2
Rate 196.2 219.9 171.6 120.6 114.2 117.6 107.8 65.6 42.2 30.8
Other Patients 466 525 569 648 736 786 801 844 771 685
Deaths 59 75 75 70 81 85 79 86 66 44
Rate 225.5 231.9 198.0 160.8 160.5 154.6 143.0 150.5 123.6 101.4
Unknown Patients 240 228 212 172 143 143 156 212 281 276
Deaths 25 30 39 18 7 8 4 10 25 17
Rate 185.4 219.6 290.8 165.0 70.8 73.7 32.8 68.5 143.1 106.0


Source: OPTN/SRTR Data as of May 1, 2007.

Patients alive on the waiting list at any time during the year are counted. Period at risk begins

the later of January 1 or waiting list registration and ends on the earlier of December 31, date of death, or date of removal for other reasons. Please see Technical Notes for further details about death rate computation.

(-) = None in category.

(*) = For cohorts with fewer than 10 patients, rates are imprecise and are not reported.